Welcome to my first blog: Advocacy Framework Services in Human Rights.
The PhD thesis titled: The Extraordinary Costs of Disability by Beatriz Martínez Ríos, who fairly recently wrote into inwwd digest network of women with disabilities, a request for opinion on her research.

My immediate response was a need for the equality and human rights commission to acknowledge that Beatriz s vital research has highlighted the need for a feasibility report, regarding an advocacy service framework, that acknowledges diversity over equality(thankyou Kicki Nordström on inwwd), under the umbrella of human rights.
I would like to invite people to read the inwwd extracts here, and furnish opinion, debate and bibliography. Awareness planning means the likes of Beatriz, Kicki, Andrea, you, me, the human rights commission, RNIB might create the interrelated task of designing like we give a damn:

Från: inwwd@yahoogroups. com [mailto:inwwd@yahoogroups. com] För Martínez Ríos, Beatriz
Skickat: den 3 april 2009 21:51
PhD Research into the Extraordinary Costs of Disability
Dear friends,

I am undertaking a research on the extraordinary costs of disability for my Phd. By extraordinary costs it is meant, all those additional or special costs that the individual has to bear as a result of his or her disability. These mean that the person with disabilities has a lower quality of life than a person without a disability with the same income. Extraordinary costs contribute to the poverty of persons with disabilities and they are not taken into account when incomes are assessed in order to be awarded with financial benefits or services.

When talking about women I believe the extra costs are higher. Not only the situation get worse and women have higher indirect costs as a result of lower employment rates or lower salaries than men, but for example, they also have higher costs than other women when carrying out their maternity. Do you have any studies on the extraordinary costs of disability with a gender perspective? I would like to give this perspective to the study and I would like to document it

Many thanks indeed.

All the best,

Beatriz Martínez Ríos

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Human Rights Advocacy Service Framework
Posted by: “V” kimjparko@yahoo.co.uk kimjparko
Mon Apr 6, 2009 7:19 am (PDT)
Hello Beatriz. Thankyou very much for making this bone of contention the focus of your thesis. As a registered visually impaired woman, everyday living enhancements are many and varied, but well out of my budget. One example of major improvement that i consider an on~going study in terms of’ wishlist’~only attainable should my residual income increase by some miracle, would have to be computer hardware, software and peripherals. The RAM in my now sadly old laptop cannot cope with the memory required for preferred text to speech software such as dolphin, windows eyes professional and jaws, coupled with the astronomical costs of such speech software, has me resorting to making do with 10 minute and 1hour trial software downloads, each requiring a restart to reuse. There is generic, microsoft assessibility inherent in all windows programs, however, microsoft s free assessibily programs do not stretch to anything other than the equivalent of a sighted person
reading the headlines of a newspaper.Whilst i ve developed the patience of a saint, alas, i m not developing my potential for communication, education and social networking, all of which are just afterall the very basics we should all be entitled, within our grasp. These issues are surely tantamount to a need, initially for the creation of a Human Rights Advocacy Service Framework, perhaps a feasibily report could be funded by the Equalities and Human Rights Commission. Until such a framework is realised we can only moan and live in helpless hope about the cost of living!
If you could kindly direct me to further reading on issues surrounding your thesis Beatriz it would be much appreciated, you have my support and i would dearly like to help. My special quality is the synergy of notion.

Best wishes, kim…

http://www.blindart .org/
http://architecture forhumanity. org/
http://www.actionfo radvocacy. org.uk/

Dear Beatriz,

I think there are no international statistics on this as both opportunities and problems differ from country to country and it is impossible to compare. In some developing countries there are no benefits to get, and even not any service. Some villages exist without any money systems, there are no schools for children with disabilities, no electricity and perhaps not even any medical service if needed.

If we compare western countries it also differ a lot, if you compare USA with Sweden for instance, you will find we have two different social welfare systems, and the systems do not cover the population in the same way!

I think that such study must be done nationally, with national statistics. If many countries undertake the same, we could perhaps after that make acomparison between different countries and perhaps between non disabled women and WWD But I do not know any country that have made such comparison yet!

Yours

Kicki

Kicki Nordström
Ombudsman
Synskadades Riksförbund (SRF)
122 88 Enskede
Sweden
Tel: +46 (0)8 39 92 55
E-mail: kicki.nordstrom@ srf.nu
World Blind Union (WBU)
Past president
Home: +(0)8 766 20 19
Cell: +46 (0)70 766 18 19

Beatriz,

Might you by any chance be on the Disability Research List? That could
be one more avenue for exchanging ideas with other disability
researchers:

Disability Research List
https://www. jiscmail. ac.uk/cgi- bin/webadmin? A0=disability- research
This list is intended for all those interested in research as it
affects disabled people. It provides a forum for the exchange of ideas,
information and news, among researchers and others working primarily
within a social interpretation of disability.

Andrea
ashettle@patriot. net
http://wecando. wordpress. com

I ve started an appeal allied to the RNIB through Everyclick, and would appreciate if some of you could give this some exposure on your sites. Thankyou people for your consideration.
Best wishes,
Kim
notion synergist
http://www.everyclick.com/kimparkinson